My Epilepsy Journey

Hi! My name is Robyn, and I’m an epileptic from Maryland, and this is my story…

My story begins on the evening December 30th, 2015. I was going into the kitchen, and then I face planted between the kitchen and the family room. I had my first ever seizure. I don’t remember anything after that, but apparently my dad called 911 because the next the I remember is waking up in the back of an ambulance on my way to the hospital. I only remember bits and pieces of being in the emergency room, so I’ll just tell you what I do remember. I remember being moved from the gurney to a bed, I remember being brought in for a CAT scan, I remember the guy that took me (he was singing both ways), and I especially remember leaving the hospital. Fast forward to a few days later, my mom was looking into neurologists. So she called my granddad (her dad) for some help. Since he used to be the president of the board at Johns Hopkins, he used some of his contacts which lead us to The First Seizure Clinic at Johns Hopkins. There, I had an EEG and a doctor’s appointment. I had an MRI done on January 10th, 2016. Then, five days later, we found out that it was Juvenile Myoclonic Epilepsy, a lifelong seizure disorder. But I do make the best of it, though. Like I participate in Special Olympics Maryland and Best Buddies.

Epilepsy may affect my life, but it doesn’t get to determine how I live it. I do!